Tuesday, March 22, 2011

Home again!

Jessica, Jacob, and I arrived home last night at about 11 p.m. I didn't think they were going to dischard us until Tuesday morning, but at about 6:35 p.m. they said that we could go. YEAH! On Sunday we saw our surgeon, Dr. Meyers. No bacteria had grown from the fluid that was tested and Dr. Meyers was positive enough that it was just lymphatic fluid that she stopped the antibiotics Sunday afternoon. They decided to send one more sample of fluid to be tested and the initial results were also negative for any bacteria. Jessica did very well the entire hospital stay. The only down side is her weight. They took out her NG tube during surgery and she had it out for about a week and a half. But when we were admitted last Thursday,she had dropped from 19.5 kg to 17.8 kg. It is common to lose some after surgery, but everyone felt that we needed to replace her feeding tube, so we did on Sunday. It is difficult to watch the toll that treatments take on Jessica's little body. She is so amazingly strong, but the side effects are still there. I just have to be more on top of her diet and pack it full as often as I can. For now we are starting back with feedings through her tube just at night, unless we don't start to see weight gain soon.
It is just nice to be home. Jessica loves being home, and for me, it is hard to even want to leave just to run to the store. Just very glad to be home!
We are exactly one week off schedule. Jessica will be admitted this following Monday for a round of chemo. Then she starts radiation Tuesday morning which will last for 14 days with the weekends off. Thank you for all of your thoughts and messages. We feel so much love and support always!!

10 comments:

  1. We are so happy to hear that you are home again! Home really is the best place to be isn't it?!? We are praying Jessica will continue to do well!

    Paul set up a website for families who are/have gone through treatments...check out our blog and follow the link. Spread the word and hopefully we can get a support group of families to get together here in St. George! love you guys!

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  2. Hello, my name is Jocelyn Townsend. I live in Tx, and u were on one of the blogs here. I have been praying for your family from the first time I read your first note. Thank you for keeping up with it, No words can say what you and your little girl and your family have been though. However you have god looking right over u and your family. Anyway, to one mom to another, you are one outstanding mom! And when you are feeling down, remember that you have many people praying for you all the way down here in Tx. Thank you for keeping up with blog. Because I check it every day, and I add your family in my prays all the time. May God be with you! Thank you for letting us in your life. The Townsend family

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  3. Glad to hear she is doing so good........We love you guys!!

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  4. Welcome home! You can tell that MANY people are hooked to your wonderful blog and we watch every day for signs of progress and happy times. The thing about this Schmitt family is that they are always happy! How we love you and continue prayers from here and the Newport temple!

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  5. I just found your blog and WOW I am so sorry to hear what you have had to go through and what an amazing little angle you have. She is stronger than most adults. My heart goes out to your family and your sweet little girl too. I had requested prayer for your family at my church and will pray daily for all of you. Keep up the figtht.. Is there an address where we can mail out cards? I know my girls would love to make her a card.
    May God watch over you all and bless each of you!
    Mechelle Hyatt and Family, Cincinnati Ohio

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  6. So glad you get to be home for a little bit. Glad everything is going well. We will be here when you come so I will have to meet up with you smoetime. Thanks for your strength and support!

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  7. I have a wierd request (or favor). I left my Camelback water bottle at Maverick in Cedar city. The one by Arby's. They are holding it for me. I LOVE it. If it isn't too much, could you bring it here for me? If not, that is fine- I can grab it on our way home. :)

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  8. How is everyone doing? Continuing to pray.

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