Thursday, October 27, 2011

No more Port!

Two days ago, Tuesday, October 25th, was Jessica's last day with her Port in! She had surgery to remove it Tuesday night at about 7:45 p.m. A very late surgery, but all went well, quick and simple, and she is doing great and very excited to be done! No more regular blood draws and NO MORE CHEMO! Her CT scans that were done on Monday look great. The spots on her lungs that the doctor was a little concerned about 3 months ago look much better. In fact where the largest tumors had been and where there had been some leftover material of some sort, they now see nothing in those spots. And the two areas where there was calcification have gotten smaller. The doctor says that those may take some time to completely dissolve, but this was definitely Jessica's best scan yet! It is strange to have this behind us now. Jessica will return to Primary's every 3 months now for 1 year for scans. Recurrence most often happens within that first year, but the 3rd and 5th years will be the big milestones to get to! It has been a journey we will never forget! The many children, families, and health professionals that we have come in contact with will never be forgotten! Many friendships and bonds have been made throughout this journey and we are so grateful for the opportunity to know all of these amazing people! It will be fun to watch Jessica continue to grow and learn and it will be fun to watch her beautiful hair grow back. The other day she was talking about her hair again and said, "When my hair grows back, Mom, I want a ponytail with a braid." So cute! With the difficult challenges always come the happy moments and many lessons learned! So thankful to be at the end of this journey. So thankful for the many little miracles that have happened along the way! And I am so thankful for a beautiful little daughter who is definitely a Miracle!

Sunday, October 9, 2011

Back to School for Jessica!!!

Jessica had her labs done today and her immune system has returned and her platelets seem to be on there way back up! Jessica was hoping she could go back to school on Monday and when I told her that her counts looked really good she just got a big huge grin on her face! With the ringing of the bell at Primary Children's, I had forgotten about the two chemo treatments that Jessica had here in St. George. She received Vin Cristine last Wednesday, along with getting Red Blood Cells and Platelets. Her Aunt Lydia went with her again to get her transfusions. She always has a ball with Aunt Lydia, who rented a red box for them and has made transfusion time something to look forward to. Jessica will get her last vin crisitne, and truly the very last treatment, this Wednesday morning. Vin cristine is what they call a place holder. It is a chemotherapy, but it does not affect Jessica's counts. I guess that is why when we left Primary Children's almost 2 weeks ago, we felt done. No more trips to S.L.C. for chemotherapy! Today Jessica said, "Mom, can you see my hair growing back?. When my hair grows back, can we braid it and pull it in a pony tail?" Is that the sweetest!! She makes very sweet comments about her hair every now and again. One time she said, "On my birthday, mom, my hair will be back. It will probably be like Jacobs. (her baby brother)" And another morning as we were getting ready for church Jessica said, "Mom, I look beautiful without hair." And she does!!! So grateful for my beautiful daughter and her amazing spirit and the strength she has shown through it all! I am so happy for her to be back at school. She is surrounded by some great little friends who I know will be a great strength to her! And her big sisters, Annalise and Alyson, have been very anxious for her to be back at school with them! They are so excited to meet Jessica at her classroom door after school!! They are great big sisters and can't wait to do their part to watch out for Jess! Caleb feels the excitement and wants to go to school too! I think we will definitely need to put Caleb in preschool next year! He will be ready to go to kindergarten, but that September birthday will keep him from going until fall of 2013. As strange as it sounds to say, 2013, it will be here before we know it! Time just doesn't slow down. There are times I just wish we could put the brakes on...even just for a minute! But, I am always reminded that I better focus on what matters most. I certainly fall short, but hope that I can do better each day! Jessica's experiences this past year have really helped our family put things into perspective! I can honestly say that I am so grateful for this journey. I am so grateful for Jessica's Miracle!!!