Jessica, Jacob, and I arrived home last night at about 11 p.m. I didn't think they were going to dischard us until Tuesday morning, but at about 6:35 p.m. they said that we could go. YEAH! On Sunday we saw our surgeon, Dr. Meyers. No bacteria had grown from the fluid that was tested and Dr. Meyers was positive enough that it was just lymphatic fluid that she stopped the antibiotics Sunday afternoon. They decided to send one more sample of fluid to be tested and the initial results were also negative for any bacteria. Jessica did very well the entire hospital stay. The only down side is her weight. They took out her NG tube during surgery and she had it out for about a week and a half. But when we were admitted last Thursday,she had dropped from 19.5 kg to 17.8 kg. It is common to lose some after surgery, but everyone felt that we needed to replace her feeding tube, so we did on Sunday. It is difficult to watch the toll that treatments take on Jessica's little body. She is so amazingly strong, but the side effects are still there. I just have to be more on top of her diet and pack it full as often as I can. For now we are starting back with feedings through her tube just at night, unless we don't start to see weight gain soon.
It is just nice to be home. Jessica loves being home, and for me, it is hard to even want to leave just to run to the store. Just very glad to be home!
We are exactly one week off schedule. Jessica will be admitted this following Monday for a round of chemo. Then she starts radiation Tuesday morning which will last for 14 days with the weekends off. Thank you for all of your thoughts and messages. We feel so much love and support always!!